On Friday 24th March 2017 Emily from Made In Liverpool, a News programme based in Liverpool, came down to The Brindley in Runcorn to meet me and learn about World Down Syndrome day and my recent work celebrating it. World Down Syndrome Day is celebrated on the 21st March every year. It aims to celebrate the lives of people who have this genetic condition, as well as raising awareness about the ongoing challenges to our rights we still face.
Coinciding with World Down Syndrome Day, on Saturday 18th March I ran an event called Celebrate Me. This event is all about celebrating the lives and dreams of people who have Down Syndrome, through creating a piece of bunting. Bunting is a decoration often used at parties which symbolises celebrations and happiness. I wanted to use this idea to help people celebrate their own lives and achievements and raise awareness of he potential people with Down Syndrome have when given opportunities.
For the interview, I was filmed in the Brindley's art gallery where Auto Agents is currently on display as I am one of its curators. Auto Agents is very much about the lives of learning disabled people too. It is based on ideas of independence and the different levels of support we have. The project was run by PHD Student Jade French and featured artists James Harper, Mark Simmonds and Alaena Turner.
I felt like I came across really well and spoke clearly without rushing it. I enjoyed being filmed it is the best thing, after the filming finished I was on cloud 100 and couldn't stop buzzing.
You can watch the news piece here, skip to 6 mins 23 secs to see my segment. https://t.co/4koHUmU1g0
My name is Leah Jones I am the course leader of a course called Positive You which aims to work with people who have learning disabilities to give them good confidence and self esteem.
I am passionate about the rights of people with Downs Syndrome which is a genetic condition from birth. Back in the early days people with Down Syndrome were often discriminated against, whilst lot’s has imporved, some attitudes towards us needs to be changed.
My event Celebrate Me is about celebrating the lives of people with Down Syndrome and to raise awareness of the condition for World Downs Syndrome Day. I wanted this workshop to show people who have Downs Syndrome that they have a right to speak out and feel good about themselves, and to give the people closest to them a positive outlook on their futures.
The workshop was a drop in event at Brindley Theatre in Runcorn on Saturday 18th March 2017. I invited people to decorate a piece of bunting which is a party decoration used at celebratory occasions. These were decorated paints, fabric coloured pens, ribbons, buttons, numbers and letters.
Organising this event made me feel like I am doing something to help people to raise awareness about learning disability, I feel like I am giving something back. My future aspiration is to exhibit this bunting in Glasgow for the International Downs Syndrome Congress in 2018.
This is about an event called Celebrate Me which I am hosting. This will be held at the Brindley Theatre in Runcorn on Saturday 18th March. It is a Bunting Drop In Workshop starting at 10:30-1:30.
Celebrate Me is being held to mark World Downs Syndrome Awareness Day on the 21st March and to celebrate the lives of people who have this genetic condition in celebrating their achievements/aspirations
Yesterday I attended the North West Regional Forum conference in the Hilton Hotel at Blackpool. This is ran by the self advocates, Lynn James Jenkinson organised this event. I facilitated my first bunting workshop for 16 self advocates, I enjoyed every moment and I am very proud of myself.
Written by Leah Jones